Our work will start with finding out the experiences and concerns of people with learning disabilities and their families. We know that some people with learning disabilities are more likely to face multiple disadvantages in hospital, and some people are less likely to be included in work about healthcare access. We are going to speak to these people first.
We expect this first group of people to include:
- people with the label of profound and multiple learning disabilities
- people from minority ethnic communities
- people whose care is labelled as ‘complex’ or ‘challenging’
- people with very low-level support needs who may attend hospital unaccompanied.
We are also going to look at existing data about health inequalities and about the work of Acute Liaison Nurses.
After our first conversations, we will work alongside people with learning disabilities and families to bring our findings to Acute Liaison Nurses and other professionals, to find solutions to the gaps identified, establish the qualities that make an excellent Acute Liaison Nurse, and highlight the support nurses need in order to reduce health inequalities and save lives.
Finally, we will create a toolkit for trusts, including some training materials and best practice stories.