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Making Our Voices Heard

On the 23rd of April members of the Patient Council met with the estates department from the Black Country Partnership Foundation Trust to approve the final plans for the site. The work should be completed in around 6 weeks time and will mean that the people using the Gerry Simon Clinic and Penrose House will have an area to sit outside the canteen and enjoy a cup of tea!

The Patient Councils next job is to choose what furniture they want on the patio area. Keith, the chair of the Patient Council said that the plans were 'better than we expected them to be and it is great it will be done by the summer so we can get the benefit from it'. This is a great achievement for the Patient Council as they saw an issue with the outside area and through being creative and working hard they have seen the area improve.
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Back in February the Black Country Partnership Foundation Trust asked Changing our Lives to help them review their value and vision statement. We wanted to make sure that people with learning disabilities were involved, so invited people with learning disabilities from across the Black Country to an event on the 19th of April.

Gemma Caffery hosted the event and started the day with a quiz to wake everyone up! The quiz was followed by a series of interactive activities that gave people the chance to say what was important to them in their life, what they wanted for the future, how should NHS staff support you and what would make the service great.

Staff from Changing our Lives and the Black Country Partnership Foundation Trust worked with people using Ipads and talking mats to get their views and opinions.

Lesley Writtle, Divisional Director for Learning Disabilities gave a short presentation about what her role is and then asked people if they were her for the day what would they improve?

Some of the key messages of the day were that people want to:
  • Be seen as a person first and a disability second
  • Health professionals should 'talk to me first and not my supporter
  • Services should fit around me, not me fit around you
  • Ppeople with learning disabilities should not be pushed out and should be seen with everyone else

The people taking part in the event also had the opportunity to film short messages for the Trust and to have their photograph taken with their 'value'. These photographs will be used by the Trust to remind everyone what people with learning disabilities expect from their services.

Steven Holmes from BCPFT said, "
“This was a fantastic day. Having the chance to sit an talk with people in this way about what was important to them, and how we could help them achieve this was very humbling. I look forward to being part of many more similar opportunities".
It was clear from the day that people had high standards for their lives including wanting to live in their own home, get married and get a job. They want to be listened to and involved in their own care and treatment.  People who attended the day commented that it was:
'A huge success, everyone enjoyed themselves'
'It was great to be listened to, we are the experts we know best'
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Changing Our Lives is currently working towards launching a new People's Parliament to focus on the rights of people with Mental Health issues. Daniel McNamee, a Self Advocacy Officer with Changing Our Lives, gave an update on the work he has been doing recently:

"As part of the work around developing the Mental Health Parliament I have been doing some community consultation work with people who have mental health issues and have used both community and inpatients mental health services across the Black Country.
To gather evidence to show there is a need for Parliament I have met with people who attend the Making A Difference group at Delta House. During the consultation I asked people what issues they are facing and what the Parliament should be working on. Key themes are emerging. People are finding that professionals who have little or no experience of working with people with mental health issues are completing the assessment processes for benefits. Another issue is employment where people feel there is employment a real stigma about employing people with mental health issues.

To ensure the parliament is fully supported I have met with various Westminster MPs. Travelling to London I met both Kevan Jones and Charles Walker who are both MPs. I presented the idea of a Mental Health Parliament; both were fully supportive.

Following on from a meeting with James Morris MP, James has agreed that the issues from the Mental Health parliament can be fed into the All Party Parliamentary Group in Westminster.  Other meetings have included a meeting with Dominic Fisher who is a Criminal Justice Liaison Officer based at Church Vale. The purpose of the meeting was to share the idea of the parliament and gather his views."
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On the 26th February Dan and Claire went to Portcullis House in Westminster to meet with the Chair of the all party mental health parliamentary group MP Charles Walker. He was very interested to hear what Changing our Lives have achieved and are continuing to do in the Black Country and nationally. They discussed the quality of health audits, patient councils and the exciting new development of a mental health parliament. Charles was particularly impressed with Dan's recent appointment as a self advocacy officer and commented it was great to see such a positive role model.
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Members of patient council at Gerry Simon Clinic in West Bromwich had the opportunity to meet 'Blind Dave' Heeley and Steve Dugmore, Changing Our Lives trustee, not forgetting Dave's dog Seamus.

We have been lucky to have Dave supporting us this year – he has run the London Marathon and cycled to Wales and back on a tandem. For over an hour and a half the group asked Dave and Steve all about being part of the opening ceremony at the Paralympics, what it was like for Dave to carry the Olympic torch and how difficult it was riding a tandem bike! (Apparently Steve doesn't peddle much!) Dave explained that you can achieve anything if you work hard enough.

One of the most poignant questions of the morning was around bullying when one of the group asked Dave if he had ever been bullied and how he had dealt with it.
The real star of the morning though was Seamus, Dave's guide dog. The group were interested to hear about how he had been trained and how he works to guide Dave. Seamus fully enjoyed all of the attention and fuss that he got!
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Building on their recent dragon's den presentation where the Gerry Simon patient council were successful in obtaining funding for the first stage of improvements around the canteen area, the patient council met once again.

This was the first opportunity for the members to review the many positive comments they received, everyone agreed that the dragon's den format had worked well and was a great way for their ideas and thoughts to be showcased. In addition, the patient council selected a few members who will join the project steering group which will regularly meet to monitor the progress of the landscaping works due to be completed in around six months time.
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On the 24th September the Patient Council at the Gerry Simon Clinic in Sandwell hosted their very own Dragons Den. The idea originally came from a piece of work the Patient Council did about how to improve the grounds and canteen at Heath Lane Hospital. Members asked the Black Country Partnership NHS Foundation Trust to 'invest' in their plans to improve the grounds and the canteen at Heath Lane.

Four 'Dragons' were invited to attend and pledge their investment and their commitment. The 'Dragons' were:
  • Bob Piper, Chairman of the BCPFT
  • Karen Dowman, Chief Executive
  • John Campbell, Chief Operating Director and
  • Lesley Writtle, Divisional Director Learning Disabilities

In true Dragons Den Style, Patient Council gave a presentation using models of how the Heath Lane Hospital site could be improved. The models showed improvements to the land at the back of the clinic and the area outside of the canteen.  Initially they were nervous, but soon got into their stride and began to enjoy themselves! The afternoon was a great success and the 'Dragons' agreed to carry out the improvement work at Heath Lane, beginning with the area outside of the canteen.

Here's what the 'Dragons' thought:

'Great way to make decisions and choices. Fantastic models, very useful way to get feedback and the film was brilliant. Might be useful to get some idea of what it would cost.' Karen Dowman

'A wonderful event. Well organised and presented. I very much liked the video (particularly the rapper)' Bob Piper

'What a fantastic Dragons Den. It really made me think about what we see everyday and with some imagination could be a wonderful place to relax, walk and have a cup of tea and a piece of cake. Some fantastic ideas and enthusiastic people, well done'. Lesley Writtle

'Fantastic presentations. Well thought through ideas. The film was informative. Loved the model- especially the seats. Well done 'I'm in!' John Campbell (Theo)
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The Gerry Simon Clinic Patient Council, launched last year, has gone from strength to strength in its first year of operation.  The Council is made up of patients from the clinic and deals directly with issues that affect them and their rights as people with learning disabilities and mental health issues.  The Council has had a great success with completing a special programme of patient led audits of the clinic.

This work identified key areas for improvement and came up with recommendations leading to the development of an accessible medication template and an accessible seclusion policy.  These audits are the first of their kind in forensic inpatient services around the country.

The Council has also changed the way patients can make complaints by inviting PALS into their monthly meetings and developing a complaints board in the style of a comic strip.  Through this unique style they have also been able to make exciting changes to the food they receive at the clinic.  In the next few months the Council aims to work on getting the outside area at Heath Lane Hospital improved and has many more projects lined up for the future.
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There is now a Patient Council in Newton House! Some of the members of the Gerry Simon Patient Council decided they wanted to set up their own Council when they moved to Newton House. Their first campaign is to get more employment and work experience opportunities for people with learning disabilities and mental health issues who have been sectioned under the mental health act.

They will be letting everyone know how they are getting on soon!

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The Patients Council are presenting 'Dragons Den' style at the Gerry Simon Clinic on the 24th September. The idea came from a piece of work they Council wanted to do to improve the grounds at Heath Lane Hospital. They will ask the Black Country Partnership NHS Foundation Trust if they will 'invest' in their plans to improve the grounds and the canteen at Heath Lane.

Four 'Dragons' have been invited to the event so that they can ask for their investment and their commitment to the improvement of the grounds. Until now the identity of the 'Dragons' has remained a secret but we can now reveal who they are!

• Karen Dowman, Chief Executive of the Black Country Partnership NHS Foundation Trust.

• Bob Piper, Chair of the Black Country Partnership NHS Foundation Trust.

• John Campbell, Chief Operating Officer of the Black Country Partnership NHS Foundation Trust.

• Lesley Writtle, Divisional Director of the Black Country Partnership NHS

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