It was clear from the day that people had high standards for their lives including wanting to live in their own home, get married and get a job. They want to be listened to and involved in their own care and treatment. People who attended the day commented that it was:“This was a fantastic day. Having the chance to sit an talk with people in this way about what was important to them, and how we could help them achieve this was very humbling. I look forward to being part of many more similar opportunities".
Following the abuses at Winterbourne View (Panorama, 2011) there has been lots of debate about how mental health services should support people with learning disabilities.
At Changing Our Lives we believe that the commissioning and development of services should be done in co-production with people with learning disabilities.
With this in mind we worked with 30 people with learning disabilities to find out their experiences and opinions of mental health services, so these views could be used to shape future commissioning and service provision.
"The Patient Journey" report examines what people with learning disabilities told us and outlines the main recommendations for future service development.
Changing Our Lives is developing a Quality of Health toolkit which will explain how to support teams of people with disabilities to review health services.
The toolkit will contain training resources for reviewing teams and examples of best practice in co-production. Part of this work will involve us piloting Quality of Health reviews in four areas across England.